GIST Support Wiki

Caregiver Support


The Family Care Navigator is a state-by-state resource intended to help you locate government, nonprofit, and private programs in your area. It includes services for family caregivers, as well as resources for older or disabled adults living at home or in a residential facility. It also includes information on government health and disability programs, legal resources, disease-specific organizations and much more.

Other valuable resources for caregivers from

Eldercare Locator (a national directory of community services) 1-800-677-1116

Family Caregiver Alliance 1-415-434-3388

Medicaid Hotline Baltimore, MD 1-800-638-6833

National Alliance for Caregiving 1-301-718-8444

National Family Caregivers Association 1-800 896-3650

National Information Center for Children and Youth with Disabilities 1-800-695-0285

The Mastocytosis Association has a thoughtful and thorough caregiving section at

Mastocytosis is one of the rare diseases in patients with GIST also being investigated in conjunction with the FLAG study at Dana-Farber in Boston.

Cancer.Net, the patient information website of the American Society of Clinical Oncology (ASCO), reminds you of tips to manage stress at

Links for cancer patients, loved ones and friends at