GIST Support WikiReport on April meeting:
Hello Everyone,
We had a great turnout. There were 50 people that registered for it and 48 showed up. The ones that didn't were sick.
For the speakers we had:
Joel Picus M.D., an oncologist at Siteman Cancer Center, discussed GIST in further detail as far as origination, treatment options, exon mutations and clinical trials. He had some great pictures to help everyone understand a little better.
William Hawkins M.D., a surgeon at Washington University, discussed when the best time is to surgically remove GIST and how that coincides with treatment plans. He also showed some great pictures as well as video of removing a tumor to help explain what he meant.
Laura Herr, an oncology nutritionist for a wellness center in Illinois. She discussed ways to deal with side effects using food and offered some tips and advice.
Teresa Deshields Ph.D., a psychologist at Washington University. She went over different ways to help cope with your feelings and emotions concerning GIST and then we had a break-out session where caregivers and patients were in separate rooms to discuss further.
If you have anyone that wants to get in touch with us, they can email us at giststlouis@hotmail.com
Thank you!
Katie Campbell www.caringbridge.org/visit/katiecampbell
The date and agenda for next meeting in St. Louis GIST Meeting will be announced when it is planned. It will run from 8:30am – 3:00pm.
It will be held at: Siteman Cancer Center /Barnes-Jewish Hospital North Steinberg Building The Brown Room 4950 Parkview Place St. Louis, MO 63110
Parking is available in the North Garage. For FREE parking, bring in your parking ticket with you to be validated!
This gathering is for patients and caregivers. All who are planning to attend need to register by calling (800)600-3606. We ask that you please register so we may get an accurate count for the food we need to order.
There is a hotel (Parkway Hotel) that is attached to the hospital and I will be getting more information regarding the rate (it will be a special hospital rate) for those interested.
A special thanks to Ally Klein and Dennis Luber (also GIST survivors) for their hard work and determination to get this thing rolling.
Also we set up a blog site to put all updated information on. Here is the link: http://giststlouis.blogspot.com/ for directions, map and hotel information. If you have any questions please email me at campbellksoup@hotmail.com or call me at (314)518-5768
Katie Campbell