GIST Support Wiki



Andy Godwin's lab at Fox Chase Cancer Center in Philadelphia has filed an application for a clinical trial involving the use of NVP-AEW541 for use with wild type adult sporadic and pediatric gist. Unfortunately, the trial is not up and running yet. If you would like to contact Dr. Godwin's lab at Fox Chase, the address and phone number are:

Fox Chase Cancer Center Dept. of Medical Oncology c/o Andy Godwin W322 FCCC 333 Cottman Avenue Philadelphia, Pennsylvania 19111

Phone: 215-728-2756

If you call, you could either speak with Dr. Godwin or Lori Rink.

NVP-AEW541 will be an oral tyrosine kinase inhibitor that will address the newly discovered involvement of IGF-1R in wild type gist. NIH is also in the process of applying for approval involving an IV antibody drug affecting AGF-1R. They anticipate that they may have their clinical trial up and running in about 4 months.

NIH in Bethesda, Maryland has a wild type adult and pediatric GIST clinic where you may be able to be seen. The contact person there is Dr. Su Young Kim. His e-mail address is:

His other contact info:

Su Young Kim, MD, PhD 10 Center Drive, Building 10, CRC 1w-3750 Bethesda Maryland 20892 301-451-7018 phone 301-451-7010 fax