GIST Support Wiki

 
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About GIST Support International

GIST Support International (GSI) is an all-volunteer, non-profit organization that reaches out to GIST patients and their families and friends to provide education and support. GSI promotes and encourages ongoing research in the quest for a cure for Gastrointestinal Stromal Tumor.

We currently have over 1550 subscribers in our listserv, where we communicate by e-mail. Members include people diagnosed with gastrointestinal stromal tumor (GIST), their family and friends, and interested health professionals.

For comprehensive information about gastrointestinal stromal tumor, please visit our main website at [1]


About MedShelf.org

MedShelf.org is part of a research project conducted by students and faculty at the University of Michigan. The goal of the project is to help online medical support groups effectively use a wiki to collaboratively create useful resources. It includes content provided by members of several participating online medical support groups that is not reviewed by medical professionals (see Disclaimer).

If you represent an online medical support group that would like to participate in the study, please contact Derek Hansen (see contact information below).

Research Project

The research project is conducted by Derek Hansen, Paul Resnick, and Sean Munson of the University of Michigan's School of Information. All contributions to MedShelf.org will be analyzed by the research team as part of the project. In addition, we will contact some contributors for voluntary interviews. The rights and privacy of individual members will be respected throughout. In conjunction with the University of Michigan's Institutional Review Board we have developed ethical guidelines to ensure your protection. Details of the study goals and the ethical procedures we are following are provided at this link.

Contact Information

If you have any questions or concerns about MedShelf.org or the associated research project, please don't hesitate to contact Derek Hansen via email at shakmatt at umich dot edu or via phone at 734-764-1008.