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  1. 14:53, 29 June 2008 ‎NVP-AEW541 (hist) ‎[1,252 bytes] ‎207.200.116.131 (New page: 7/08: Andy Godwin's lab at Fox Chase Cancer Center in Philadelphia has filed an application for a clinical trial involving the use of NVP-AEW541 for use with wild type adult sporadic and ...)
  2. 11:40, 23 June 2008 ‎Premiere Oncology, Scottsdale (hist) ‎[278 bytes] ‎Julie (contribs) (added page)
  3. 19:05, 18 June 2008 ‎CT Intravenous Contrast (hist) ‎[4,322 bytes] ‎Julie (contribs) (Julie added page)
  4. 01:20, 18 June 2008 ‎Blood trough level test for Gleevec concentration (hist) ‎[2,761 bytes] ‎207.200.116.67 (New page: I learned of Dr. George Demetri's (Dana-Farber) small study, presented at ASCO in January 2008, showing longer progression-free survival for metastatic and unresectable GIST patients if th...)
  5. 21:03, 17 June 2008 ‎"Reading" My CT Scans (hist) ‎[3,822 bytes] ‎Julie (contribs) (new page created)
  6. 18:28, 17 June 2008 ‎Understanding Your Scans (hist) ‎[1,417 bytes] ‎Julie (contribs) (Julie created page)
  7. 11:24, 16 June 2008 ‎CT Scans (hist) ‎[784 bytes] ‎Julie (contribs) (Julie created page)
  8. 11:03, 16 June 2008 ‎CT Contrast Choices (hist) ‎[1,387 bytes] ‎74.242.225.38 (Julie started this page on CT contrasts)
  9. 18:43, 1 June 2008 ‎ASCO Convention - May 30 to June 3, 2008, Chicago, Illinois (hist) ‎[11,440 bytes] ‎XOCarolyn (contribs) (New page: American Society of Clinical Oncologists Convention Friday, May 30 through Tuesday, June 3, 2008 Marina Syncox, Sherri Janousky and Carolyn Grobe attended ASCO this past weekend in Chica...)
  10. 17:18, 1 June 2008 ‎ASCO Convention - May 30 to June 3, Chicago, Illinois (hist) ‎[2,971 bytes] ‎XOCarolyn (contribs) (New page: American Society of Clinical Oncologists Convention Friday, May 30 through Tuesday, June 3, 2008 Chicago, Illinois Marina Syncox, Sherri Janousky and Carolyn Grobe attended ASCO this past...)
  11. 20:12, 30 May 2008 ‎Drug Interactions (hist) ‎[1,347 bytes] ‎Julie (contribs) (New page: Many patients wonder and worry about possible interactions between GIST rugs such as Gleevec or Sutent and other non-cancer drugs they are taking, or simply about interactions among the no...)
  12. 22:50, 29 May 2008 ‎Dr. Mel Heller discusses BENIGN VS MALIGNANT GIST (hist) ‎[3,994 bytes] ‎BBR950 (contribs) (New page: FROM DR. MEL: Let me add a few simple, not-techy things in plain English, about what MD's mean when we talk about different kinds of tumors. What, for example, is a tumor? 1. First, a t...)
  13. 14:11, 29 May 2008 ‎ESMO International Symposium - May 13, 2008, Milan, Italy (hist) ‎[4,840 bytes] ‎XOCarolyn (contribs) (New page: ESMO International Symposium - May 13, Milan, Italy I would like to report that I attended the GIST session at ESMO International Symposium on Tuesday, May 13 in Milan. 13 medical speeche...)
  14. 01:31, 28 May 2008 ‎M. Sklodowska-Curie Memorial Cancer Center and Institute of Oncology (hist) ‎[267 bytes] ‎Bbr950 (contribs) (New page: Here is a center doing GIST research in Poland: Department of Soft Tissue/Bone Sarcoma and Melanoma, M. Sklodowska-Curie Memorial Cancer Center and Institute of Oncology, Roentgena 5, 02-...)
  15. 01:28, 28 May 2008 ‎University of Heidelberg (hist) ‎[192 bytes] ‎Bbr950 (contribs) (New page: In Germany Dr. Hohenberer is a well-known GIST surgeon: Department of Surgery, Faculty of Medicine, University of Heidelberg, Mannheim, Germany. peter.hohenberger@chir.ma.uni-heidelber...)
  16. 01:21, 28 May 2008 ‎Sunscreen for sunburn protection (hist) ‎[509 bytes] ‎Bbr950 (contribs) (New page: When I go outside, I burn to the point that it looks like I'm turning reddish purple. I tried everything I could find. Finally my onc. told me to look for sun screen with Titanium Dioxid...)
  17. 04:38, 25 May 2008 ‎Custom Gown for a Hospital Stay (hist) ‎[898 bytes] ‎Bbr950 (contribs) (New page: A great idea from Katherine Somervell.... printed with her permission: Due to the various ports and feeding tubes that her sister has, she can't wear her own nightgowns and has been in th...)
  18. 04:03, 25 May 2008 ‎How Long to take Adjuvant Gleevec (hist) ‎[4,056 bytes] ‎Bbr950 (contribs) (New page: No one knows the answer regarding how long to stay on adjuvant Gleevec. Dr. DeMatteo's Z9001 trial demonstrates that one year is not long enough--a significant number of pts recur after...)
  19. 14:37, 20 May 2008 ‎Eye Issue - Redness (hist) ‎[1,343 bytes] ‎BBR950 (contribs) (New page: I still suffer from the dread "red eye"...sub-conjunctival hematoma. --------------------------- I experience red eyes. My opthomologist says that they are very dry and recommends FREQUENT...)
  20. 04:18, 20 May 2008 ‎Post Whipple Diet (hist) ‎[3,643 bytes] ‎BBR950 (contribs) (New page: Eat as if you had gastric bypass surgery....eat light and go from there.... Nutrition Following a Whipple Procedure; Patients who undergo the Whipple procedure often have many questions...)
  21. 03:01, 18 May 2008 ‎Interview with Dr. Godwin on IGF (hist) ‎[4,126 bytes] ‎205.188.116.79 (New page: http://www.medpagetoday.com/HematologyOncology/OtherCancers/tb/9492 AN INTERVIEW WITH DR. ANDREW GODWIN OF FCCC CAN BE HEARD ON THIS SITE. Missing Mutations Hold Clue to Imatinib (Gleeve...)
  22. 02:51, 18 May 2008 ‎UCLA (hist) ‎[598 bytes] ‎205.188.117.195 (New page: When we have Scans or Dr. app. at UCLA we stay overnight at the Hotel Angeleno. They give a very good discount to Pts at UCLA, free valet parking, free transportation to the hospital and ...)
  23. 00:17, 17 May 2008 ‎Fox Chase in the news: IGF-1R and GIST - 05/16/08 (hist) ‎[3,608 bytes] ‎205.188.116.195 (New page: ""Preliminary studies have shown that GIST cells, especially Gleevec-resistant cells, might respond well to agents in development for treatment-resistant breast cancer, a form of breast ca...)
  24. 17:34, 16 May 2008 ‎Member Reports from GIST Conferences (hist) ‎[155 bytes] ‎XOCarolyn (contribs) (New page: GSI members who attend GIST-related conferences are invited to post your comments and understanding of the information presented.)
  25. 17:23, 16 May 2008 ‎ESMO International Symposium - May 13, Milan, Italy (hist) ‎[4,869 bytes] ‎XOCarolyn (contribs) (New page: ESMO International Symposium - May 13, Milan, Italy I would like to report that I attended the GIST session at ESMO International Symposium on Tuesday, May 13 in Milan. 13 medical speeche...)
  26. 17:17, 16 May 2008 ‎Members Reports from GIST Conferences (hist) ‎[5,010 bytes] ‎XOCarolyn (contribs) (New page: =='''ESMO International Symposium - May 13, Milan, Italy'''== I would like to report that I attended the GIST session at ESMO International Symposium on Tuesday, May 13 in Milan. 13 ...)
  27. 17:03, 16 May 2008 ‎Side Effects (hist) ‎[246 bytes] ‎XOCarolyn (contribs) (New page: * '''Gleevec Side Effects''' - Strategies for coping with common Gleevec side effects. *Gleevec Interactions *Gleevec and Dental Surgery * '''Sutent Side Effects''' - ...)
  28. 14:10, 16 May 2008 ‎Antonescu's Pediatric GIST - IGF-1R Overexpressed- 5/2008 (hist) ‎[3,077 bytes] ‎207.200.116.12 (New page: "" In vitro studies showed that nilotinib, sunitinib, dasatinib, and sorafenib are more effective than imatinib against WT KIT."" ""Pediatric GISTs showed a distinct transcriptional signa...)
  29. 14:02, 16 May 2008 ‎Godwin's IGF-1R link to wild-type GIST w/ Marina's Explanation (hist) ‎[7,279 bytes] ‎207.200.116.11 (New page: ""Our results reveal for the first time that the IGF1R gene is amplified and the protein is overexpressed in WT and pediatric GISTs."" ""Our results demonstrate that the aberrant expressi...)
  30. 23:21, 5 May 2008 ‎Accepting the diagnosis (hist) ‎[4,423 bytes] ‎64.12.117.75 (New page: When I first wrote this, I was new to this group, as my husband, only 47, had been diagnosed on July 20, 2005 and had surgery on August 1 to remove a single 4.8 cm gist with about 15% of h...)
  31. 16:13, 4 May 2008 ‎BGT226 (hist) ‎[2,032 bytes] ‎Wikimon (contribs) (New page: '''19 Apr 2008''' From: Marina Symcox Subject: Clinical trial for BGT226 a PI3K inhibitor by Novartis Hello everyone, PI3K (Pee Eye three KYE-nase) is a very important signaling prot...)
  32. 15:36, 29 April 2008 ‎Marina: More on Exon 11 mutations (hist) ‎[1,124 bytes] ‎BBR950 (contribs) (New page: Just for everyone...think automobiles...consider exon 11 is a long linear molecular...consider it as a stretch of a car...a Hummer Limo... 3' ("three prime") refers to the rear bumper o...)
  33. 13:57, 29 April 2008 ‎Royal Oak (hist) ‎[308 bytes] ‎BBR950 (contribs) (New page: The meeting is Saturday, May 3, from 12:30 to 2:30 p.m. at Gilda's Club in Royal Oak, Michigan. We don't have a formal agenda. We just get together and talk, share experiences, support e...)
  34. 02:41, 29 April 2008 ‎Michigan (hist) ‎[362 bytes] ‎BBR950 (contribs) (New page: This is a reminder that the Michigan LRG meeting is Saturday, May 3,)
  35. 01:03, 26 April 2008 ‎Marina's analogy: Adjuvant Gleevec and GIST cells crossing the street (hist) ‎[7,709 bytes] ‎BBR950 (contribs) (New page: Let's say you have cancer cells sitting on a nice wrought iron and wood slat bench by the bus stop. These are dormant cells, just sitting there...maybe Forrest Gump is sitting next to the...)
  36. 13:52, 22 April 2008 ‎Hemorrhoids (hist) ‎[1,569 bytes] ‎BBR950 (contribs) (New page: The pharmacist said taking Preparation H will interfere with my blood pressure medicine. He told me to try Desitin cream. This is a baby rash ointment. ---------------------------------...)
  37. 00:00, 16 April 2008 ‎Houston (hist) ‎[2,614 bytes] ‎BBR950 (contribs) (New page: Dear Friends, We are wondering whether there are any of you who would like, and be able, to come to a social gathering on the afternoon of Saturday July 26th in Houston? There are no def...)
  38. 23:25, 13 April 2008 ‎Appetite problems (hist) ‎[36 bytes] ‎BBR950 (contribs) (New page: See the section on Relief Strategies)
  39. 23:15, 13 April 2008 ‎Appetite Problems (hist) ‎[3,522 bytes] ‎BBR950 (contribs) (New page: Here is a little trick a doctor once used on me when I could not eat. He gave me this "prescription". Take ONE bite (about 1 inch square) of something on a long list of foods. He sai...)
  40. 14:55, 11 April 2008 ‎Pharmaceutical Company Contacts (hist) ‎[654 bytes] ‎BBR950 (contribs) (New page: NEX-CONNECT FOR NEXAVAR FREE to anyone taking Nexavar. PHONE NUMBER: 1-866-639-2827. Patient or caregiver registers by phone and a nurse calls you back for more info. The enrollment ...)
  41. 02:57, 4 April 2008 ‎South Central PA (hist) ‎[893 bytes] ‎BBR950 (contribs) (New page: Hello friends in PA and surrounding areas, It's time to organize! I would like to invite you to attend a get together for GIST patients, caregivers, families, etc. First things first, a...)
  42. 15:02, 3 April 2008 ‎New Canadian group forming (hist) ‎[1,060 bytes] ‎BBR950 (contribs) (New page: Hello everyone, and hello to Canadian members in particular. I wanted to let you all know that I am working to put the Canadian group on an established footing. I plan to incorporate ...)
  43. 00:55, 3 April 2008 ‎Bethesda (hist) ‎[7,383 bytes] ‎BBR950 (contribs) (New page: I do not post often on the adult site, but post often on the pediatric list-serv/support group. We have a group of adults, ages 20's and 30's mostly, and Moms of teens and younger childre...)
  44. 22:07, 31 March 2008 ‎From Dr. Thomas George, Dept. of Oncology/hematology at the VA Medical Center and Shands at the Univ. of Fla. in Gainesville re; splitting Gleevec Dosage (hist) ‎[1,708 bytes] ‎207.200.116.71 (New page: 03/30/08 The data to support splitting doses in GIST are not nearly as robust as in CML. In that disease, there definitely appears to be a relationship between keeping the intensity of t...)
  45. 14:53, 25 March 2008 ‎Dr. Corless answers about using Pfetin as a biological marker (hist) ‎[1,458 bytes] ‎207.200.116.202 (New page: March 25, 2008 I wrote Dr.Corless at OHSU lab, (Portland, OR) which did my mutation testing, about using Pfetin as a Prognostic Biomarker. Julie recently posted the abstract on the list...)
  46. 20:13, 21 March 2008 ‎Gleevec and Sutent (hist) ‎[3,033 bytes] ‎Wikimon (contribs) (New page: Click the link below to find out about this trial. http://www.cancer.gov/search/ViewClinicalTrials.aspx?cdrid=579449&version=patient&protocolsearchid=4290624)
  47. 17:08, 21 March 2008 ‎BIIB021 (hist) ‎[7,278 bytes] ‎Wikimon (contribs) (New page: The trial sites include NYC (I assume MSKCC) and Rochester MN (I assume the Mayo clinic). Contact is through the trial sponsor, Biogen: oncologyclinicaltrials@biogenidec.com Biogen ...)
  48. 17:01, 21 March 2008 ‎800mg Gleevec vs. 37.5mg Sutent after progression on 400mg Gleevec (hist) ‎[1,324 bytes] ‎Wikimon (contribs) (New page: '''4 Mar 2008''' Marina writes: http://www.clinicaltrials.gov/ct2/show/NCT00372567? term=3Dgastrointestinal+stromal+tumor&recr=3DOpen&rank=3D8 Have you added a Wiki page for the trial l...)
  49. 05:06, 14 March 2008 ‎Dr. D'Amato speaks about splitting GLEEVEC dosage (hist) ‎[1,547 bytes] ‎207.200.116.65 (New page: Below message from Dr D'Amato regarding her opinion on Gleevec dosing. It can be posted. -------------------- The ideal dose of Gleevec is 400 mg a day for the majority of GIST patients....)
  50. 22:47, 11 March 2008 ‎Novartis reponds to question about splitting GLEEVEC dosage (hist) ‎[848 bytes] ‎207.200.116.68 (New page: Novartis Oncology One Health Plaza East Hanover, NJ 087939-1080 March 11, 2008 REBECA PORTO MD MIAMI, FL 33156 Dear Dr. Porto: This letter is in response to your request for in...)

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