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- 14:53, 29 June 2008 NVP-AEW541 (hist) [1,252 bytes] 207.200.116.131 (New page: 7/08: Andy Godwin's lab at Fox Chase Cancer Center in Philadelphia has filed an application for a clinical trial involving the use of NVP-AEW541 for use with wild type adult sporadic and ...)
- 11:40, 23 June 2008 Premiere Oncology, Scottsdale (hist) [278 bytes] Julie (contribs) (added page)
- 19:05, 18 June 2008 CT Intravenous Contrast (hist) [4,322 bytes] Julie (contribs) (Julie added page)
- 01:20, 18 June 2008 Blood trough level test for Gleevec concentration (hist) [2,761 bytes] 207.200.116.67 (New page: I learned of Dr. George Demetri's (Dana-Farber) small study, presented at ASCO in January 2008, showing longer progression-free survival for metastatic and unresectable GIST patients if th...)
- 21:03, 17 June 2008 "Reading" My CT Scans (hist) [3,822 bytes] Julie (contribs) (new page created)
- 18:28, 17 June 2008 Understanding Your Scans (hist) [1,417 bytes] Julie (contribs) (Julie created page)
- 11:24, 16 June 2008 CT Scans (hist) [784 bytes] Julie (contribs) (Julie created page)
- 11:03, 16 June 2008 CT Contrast Choices (hist) [1,387 bytes] 74.242.225.38 (Julie started this page on CT contrasts)
- 18:43, 1 June 2008 ASCO Convention - May 30 to June 3, 2008, Chicago, Illinois (hist) [11,440 bytes] XOCarolyn (contribs) (New page: American Society of Clinical Oncologists Convention Friday, May 30 through Tuesday, June 3, 2008 Marina Syncox, Sherri Janousky and Carolyn Grobe attended ASCO this past weekend in Chica...)
- 17:18, 1 June 2008 ASCO Convention - May 30 to June 3, Chicago, Illinois (hist) [2,971 bytes] XOCarolyn (contribs) (New page: American Society of Clinical Oncologists Convention Friday, May 30 through Tuesday, June 3, 2008 Chicago, Illinois Marina Syncox, Sherri Janousky and Carolyn Grobe attended ASCO this past...)
- 20:12, 30 May 2008 Drug Interactions (hist) [1,347 bytes] Julie (contribs) (New page: Many patients wonder and worry about possible interactions between GIST rugs such as Gleevec or Sutent and other non-cancer drugs they are taking, or simply about interactions among the no...)
- 22:50, 29 May 2008 Dr. Mel Heller discusses BENIGN VS MALIGNANT GIST (hist) [3,994 bytes] BBR950 (contribs) (New page: FROM DR. MEL: Let me add a few simple, not-techy things in plain English, about what MD's mean when we talk about different kinds of tumors. What, for example, is a tumor? 1. First, a t...)
- 14:11, 29 May 2008 ESMO International Symposium - May 13, 2008, Milan, Italy (hist) [4,840 bytes] XOCarolyn (contribs) (New page: ESMO International Symposium - May 13, Milan, Italy I would like to report that I attended the GIST session at ESMO International Symposium on Tuesday, May 13 in Milan. 13 medical speeche...)
- 01:31, 28 May 2008 M. Sklodowska-Curie Memorial Cancer Center and Institute of Oncology (hist) [267 bytes] Bbr950 (contribs) (New page: Here is a center doing GIST research in Poland: Department of Soft Tissue/Bone Sarcoma and Melanoma, M. Sklodowska-Curie Memorial Cancer Center and Institute of Oncology, Roentgena 5, 02-...)
- 01:28, 28 May 2008 University of Heidelberg (hist) [192 bytes] Bbr950 (contribs) (New page: In Germany Dr. Hohenberer is a well-known GIST surgeon: Department of Surgery, Faculty of Medicine, University of Heidelberg, Mannheim, Germany. peter.hohenberger@chir.ma.uni-heidelber...)
- 01:21, 28 May 2008 Sunscreen for sunburn protection (hist) [509 bytes] Bbr950 (contribs) (New page: When I go outside, I burn to the point that it looks like I'm turning reddish purple. I tried everything I could find. Finally my onc. told me to look for sun screen with Titanium Dioxid...)
- 04:38, 25 May 2008 Custom Gown for a Hospital Stay (hist) [898 bytes] Bbr950 (contribs) (New page: A great idea from Katherine Somervell.... printed with her permission: Due to the various ports and feeding tubes that her sister has, she can't wear her own nightgowns and has been in th...)
- 04:03, 25 May 2008 How Long to take Adjuvant Gleevec (hist) [4,056 bytes] Bbr950 (contribs) (New page: No one knows the answer regarding how long to stay on adjuvant Gleevec. Dr. DeMatteo's Z9001 trial demonstrates that one year is not long enough--a significant number of pts recur after...)
- 14:37, 20 May 2008 Eye Issue - Redness (hist) [1,343 bytes] BBR950 (contribs) (New page: I still suffer from the dread "red eye"...sub-conjunctival hematoma. --------------------------- I experience red eyes. My opthomologist says that they are very dry and recommends FREQUENT...)
- 04:18, 20 May 2008 Post Whipple Diet (hist) [3,643 bytes] BBR950 (contribs) (New page: Eat as if you had gastric bypass surgery....eat light and go from there.... Nutrition Following a Whipple Procedure; Patients who undergo the Whipple procedure often have many questions...)
- 03:01, 18 May 2008 Interview with Dr. Godwin on IGF (hist) [4,126 bytes] 205.188.116.79 (New page: http://www.medpagetoday.com/HematologyOncology/OtherCancers/tb/9492 AN INTERVIEW WITH DR. ANDREW GODWIN OF FCCC CAN BE HEARD ON THIS SITE. Missing Mutations Hold Clue to Imatinib (Gleeve...)
- 02:51, 18 May 2008 UCLA (hist) [598 bytes] 205.188.117.195 (New page: When we have Scans or Dr. app. at UCLA we stay overnight at the Hotel Angeleno. They give a very good discount to Pts at UCLA, free valet parking, free transportation to the hospital and ...)
- 00:17, 17 May 2008 Fox Chase in the news: IGF-1R and GIST - 05/16/08 (hist) [3,608 bytes] 205.188.116.195 (New page: ""Preliminary studies have shown that GIST cells, especially Gleevec-resistant cells, might respond well to agents in development for treatment-resistant breast cancer, a form of breast ca...)
- 17:34, 16 May 2008 Member Reports from GIST Conferences (hist) [155 bytes] XOCarolyn (contribs) (New page: GSI members who attend GIST-related conferences are invited to post your comments and understanding of the information presented.)
- 17:23, 16 May 2008 ESMO International Symposium - May 13, Milan, Italy (hist) [4,869 bytes] XOCarolyn (contribs) (New page: ESMO International Symposium - May 13, Milan, Italy I would like to report that I attended the GIST session at ESMO International Symposium on Tuesday, May 13 in Milan. 13 medical speeche...)
- 17:17, 16 May 2008 Members Reports from GIST Conferences (hist) [5,010 bytes] XOCarolyn (contribs) (New page: =='''ESMO International Symposium - May 13, Milan, Italy'''== I would like to report that I attended the GIST session at ESMO International Symposium on Tuesday, May 13 in Milan. 13 ...)
- 17:03, 16 May 2008 Side Effects (hist) [246 bytes] XOCarolyn (contribs) (New page: * '''Gleevec Side Effects''' - Strategies for coping with common Gleevec side effects. *Gleevec Interactions *Gleevec and Dental Surgery * '''Sutent Side Effects''' - ...)
- 14:10, 16 May 2008 Antonescu's Pediatric GIST - IGF-1R Overexpressed- 5/2008 (hist) [3,077 bytes] 207.200.116.12 (New page: "" In vitro studies showed that nilotinib, sunitinib, dasatinib, and sorafenib are more effective than imatinib against WT KIT."" ""Pediatric GISTs showed a distinct transcriptional signa...)
- 14:02, 16 May 2008 Godwin's IGF-1R link to wild-type GIST w/ Marina's Explanation (hist) [7,279 bytes] 207.200.116.11 (New page: ""Our results reveal for the first time that the IGF1R gene is amplified and the protein is overexpressed in WT and pediatric GISTs."" ""Our results demonstrate that the aberrant expressi...)
- 23:21, 5 May 2008 Accepting the diagnosis (hist) [4,423 bytes] 64.12.117.75 (New page: When I first wrote this, I was new to this group, as my husband, only 47, had been diagnosed on July 20, 2005 and had surgery on August 1 to remove a single 4.8 cm gist with about 15% of h...)
- 16:13, 4 May 2008 BGT226 (hist) [2,032 bytes] Wikimon (contribs) (New page: '''19 Apr 2008''' From: Marina Symcox Subject: Clinical trial for BGT226 a PI3K inhibitor by Novartis Hello everyone, PI3K (Pee Eye three KYE-nase) is a very important signaling prot...)
- 15:36, 29 April 2008 Marina: More on Exon 11 mutations (hist) [1,124 bytes] BBR950 (contribs) (New page: Just for everyone...think automobiles...consider exon 11 is a long linear molecular...consider it as a stretch of a car...a Hummer Limo... 3' ("three prime") refers to the rear bumper o...)
- 13:57, 29 April 2008 Royal Oak (hist) [308 bytes] BBR950 (contribs) (New page: The meeting is Saturday, May 3, from 12:30 to 2:30 p.m. at Gilda's Club in Royal Oak, Michigan. We don't have a formal agenda. We just get together and talk, share experiences, support e...)
- 02:41, 29 April 2008 Michigan (hist) [362 bytes] BBR950 (contribs) (New page: This is a reminder that the Michigan LRG meeting is Saturday, May 3,)
- 01:03, 26 April 2008 Marina's analogy: Adjuvant Gleevec and GIST cells crossing the street (hist) [7,709 bytes] BBR950 (contribs) (New page: Let's say you have cancer cells sitting on a nice wrought iron and wood slat bench by the bus stop. These are dormant cells, just sitting there...maybe Forrest Gump is sitting next to the...)
- 13:52, 22 April 2008 Hemorrhoids (hist) [1,569 bytes] BBR950 (contribs) (New page: The pharmacist said taking Preparation H will interfere with my blood pressure medicine. He told me to try Desitin cream. This is a baby rash ointment. ---------------------------------...)
- 00:00, 16 April 2008 Houston (hist) [2,614 bytes] BBR950 (contribs) (New page: Dear Friends, We are wondering whether there are any of you who would like, and be able, to come to a social gathering on the afternoon of Saturday July 26th in Houston? There are no def...)
- 23:25, 13 April 2008 Appetite problems (hist) [36 bytes] BBR950 (contribs) (New page: See the section on Relief Strategies)
- 23:15, 13 April 2008 Appetite Problems (hist) [3,522 bytes] BBR950 (contribs) (New page: Here is a little trick a doctor once used on me when I could not eat. He gave me this "prescription". Take ONE bite (about 1 inch square) of something on a long list of foods. He sai...)
- 14:55, 11 April 2008 Pharmaceutical Company Contacts (hist) [654 bytes] BBR950 (contribs) (New page: NEX-CONNECT FOR NEXAVAR FREE to anyone taking Nexavar. PHONE NUMBER: 1-866-639-2827. Patient or caregiver registers by phone and a nurse calls you back for more info. The enrollment ...)
- 02:57, 4 April 2008 South Central PA (hist) [893 bytes] BBR950 (contribs) (New page: Hello friends in PA and surrounding areas, It's time to organize! I would like to invite you to attend a get together for GIST patients, caregivers, families, etc. First things first, a...)
- 15:02, 3 April 2008 New Canadian group forming (hist) [1,060 bytes] BBR950 (contribs) (New page: Hello everyone, and hello to Canadian members in particular. I wanted to let you all know that I am working to put the Canadian group on an established footing. I plan to incorporate ...)
- 00:55, 3 April 2008 Bethesda (hist) [7,383 bytes] BBR950 (contribs) (New page: I do not post often on the adult site, but post often on the pediatric list-serv/support group. We have a group of adults, ages 20's and 30's mostly, and Moms of teens and younger childre...)
- 22:07, 31 March 2008 From Dr. Thomas George, Dept. of Oncology/hematology at the VA Medical Center and Shands at the Univ. of Fla. in Gainesville re; splitting Gleevec Dosage (hist) [1,708 bytes] 207.200.116.71 (New page: 03/30/08 The data to support splitting doses in GIST are not nearly as robust as in CML. In that disease, there definitely appears to be a relationship between keeping the intensity of t...)
- 14:53, 25 March 2008 Dr. Corless answers about using Pfetin as a biological marker (hist) [1,458 bytes] 207.200.116.202 (New page: March 25, 2008 I wrote Dr.Corless at OHSU lab, (Portland, OR) which did my mutation testing, about using Pfetin as a Prognostic Biomarker. Julie recently posted the abstract on the list...)
- 20:13, 21 March 2008 Gleevec and Sutent (hist) [3,033 bytes] Wikimon (contribs) (New page: Click the link below to find out about this trial. http://www.cancer.gov/search/ViewClinicalTrials.aspx?cdrid=579449&version=patient&protocolsearchid=4290624)
- 17:08, 21 March 2008 BIIB021 (hist) [7,278 bytes] Wikimon (contribs) (New page: The trial sites include NYC (I assume MSKCC) and Rochester MN (I assume the Mayo clinic). Contact is through the trial sponsor, Biogen: oncologyclinicaltrials@biogenidec.com Biogen ...)
- 17:01, 21 March 2008 800mg Gleevec vs. 37.5mg Sutent after progression on 400mg Gleevec (hist) [1,324 bytes] Wikimon (contribs) (New page: '''4 Mar 2008''' Marina writes: http://www.clinicaltrials.gov/ct2/show/NCT00372567? term=3Dgastrointestinal+stromal+tumor&recr=3DOpen&rank=3D8 Have you added a Wiki page for the trial l...)
- 05:06, 14 March 2008 Dr. D'Amato speaks about splitting GLEEVEC dosage (hist) [1,547 bytes] 207.200.116.65 (New page: Below message from Dr D'Amato regarding her opinion on Gleevec dosing. It can be posted. -------------------- The ideal dose of Gleevec is 400 mg a day for the majority of GIST patients....)
- 22:47, 11 March 2008 Novartis reponds to question about splitting GLEEVEC dosage (hist) [848 bytes] 207.200.116.68 (New page: Novartis Oncology One Health Plaza East Hanover, NJ 087939-1080 March 11, 2008 REBECA PORTO MD MIAMI, FL 33156 Dear Dr. Porto: This letter is in response to your request for in...)
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